By Dorothy C. Wertz Ph.D., John C. Fletcher Ph.D. (auth.), Dorothy C. Wertz Ph.D., John C. Fletcher Ph.D. (eds.)
Based partially on a survey of moral decision-marking between 682 clinical geneticists all over the world, this publication encompasses a bankruptcy authored by way of a geneticistand an ethicist in 19 international locations, describing genetic prone, counselling, screening, prenatal prognosis, and significant moral difficulties and social controversies confronted through geneticists. The concluding bankruptcy describes moral and coverage matters that exist around the globe, and offerssome attainable resolutions.
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Extra info for Ethics and Human Genetics: A Cross-Cultural Perspective
If we had used percentages of the total number of responses, the United States, with 43% of all respondents, would have been disproportionately represented. 3 Regression Analyses In order to see whether geneticists' choices of actions were consistently related to factors in their professional or personal backgrounds, over and above their nationality, we entered all socio-demographic data, including degree, age, gender, years of experience, hours per week in genetics, patients per week, subspeciality, political inclination, religious background, religiosity, and nation into stepwise logistic regressions, with choice of action as the dependent variable.
Some respondents trained in the U. , U. , or Canada may have responded in terms of the ethics learned in their post-graduate training rather than the ethics practiced in their own nations. As the questionnaires did not ask about training abroad, there is no way of assessing its effects upon ethical decision-making. 1 Outline of Ethical Problems The 14 clinical cases covered five types of ethical problems: 1) confidentiality versus duties to third parties (3 cases); 2) full disclosure of sensitive information (2 cases); 3) full disclosure of laboratory test results (3 cases), 4) indications for prenatal diagnosis (3 cases), 5) directive/nondirective counseling (3 cases).
These are summarized in figure 1. 11 describes three cases (Cases 9, 10, and 11) in which patients either request prenatal diagnosis without medical indications or say that they will not abort an affected fetus. In Case 9, a couple aged 42 with a Down syndrome child requests prenatal diagnosis in order to prepare themselves for the possible birth of another Down syndrome child, but say that they will not terminate the pregnancy. Eighty-five per cent of respondents would either perform prenatal diagnosis for this couple (83%) or refer them to someone who would (2%).